Jamie was diagnosed with I-Cell right after his first birthday in 1975. He passed when he was 2 1/2 years old. At that time the doctors here knew absolutly nothing about the disease - only the name. I was told to take him home and love him; he would not live past five years old. The news was devastating, his symptoms were not treated. Being my first child I was ignorant to such things as meeting milestones or what "normal" was. All I knew was that he was mine and he was perfect. Although I was fortunate to have a loving, supportive family, I longed to be in contact with other mothers who "got it".
Thirty plus years later I finally did connect with other families. I was also honored to meet Dr. Jules LeRoy who discovered I-Cell. He informed me that Jamie was probably one of the first five children to be diagnosed.
I am so excited to again be participating in the annual YGF 5K Charity Run/Walk for a Cure in memory of my Jamie and in hope that one day a cure to I-Cell/ML will be discovered.
100% of the money raised from this event will be used to enhance research initiatives that will assist in improving the overall quality of life among children living with this horrible disease.
In the past I set my goal at $10.00 for each year since I last held Jamie (this year marks 45 years). However, this will be my last walk (at least for now) and I want to go out BIG so I am upping my goal to $500.00. If you remember Jamie, or know how much I miss him daily, please consider helping me by sponsoring “Team Jamie & Me” in this walk and honoring his memory.