YASH GANDHI FOUNDATION
The Yash Gandhi Foundation is a registered 501(c)(3) not for profit organization. There are no over-head costs or salaries paid out by this foundation. All contributions are 100% directed to fund for research in I-Cell. The Foundation was established in 2002 after Ash and Sonal Gandhi, Yash's parents, found out that he had been diagnosed with Mucolipidosis II. As any parent would do, we are taking the challenge to help find a cure for this terrible disease so that it can help other children in the future. Yash passed away in 2009 but his memory is still very much alive through YGF. Today, the foundation is operated by Ash, Sonal, and Kavi, who is Yash's younger brother. Since 2014, the Yash Gandhi Foundation has awarded $614,000 in research grants to prominent researchers and institutions in the field of lysosomal storage disorders.
Our mission is to raise awareness, build patient advocacy, and sustain research efforts into finding a cure for Mucolipidosis II (I-Cell Disease).
I-CELL OR MUCOLIPIDOSIS II
I-Cell disease is a rare genetic disease with no current cure. It occurs due to a lack of several enzymes leading to accumulation of fatty substances and carbohydrates within the tissues of the body. Children like Yash with I-cell disease typically have difficulty in walking, frequent respiratory infections that can be life threatening, overgrowth of gum tissue, joint stiffness and abnormalities of the heart. Children with I-cell disease unfortunately die in childhood. Yash passed away at the age of 8 years old.
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