Jamie was diagnosed with I-Cell right after his first birthday in 1975. He passed when he was 2 1/2 years old. At that time the doctors here knew absolutly nothing about the disease - only the name. I was told to take him home and love him; he would not live past five years old. The news was devastating, his symptoms were not treated. Being my first child I was ignorant to such things as meeting milestones or what "normal" was. All I knew was that he was mine and he was perfect. Although I was fortunate to have a loving, supportive family, I longed to be in contact with another mother who "got it".
Thirty five years later I finally did connect with other families. I was also honored to meet Dr. Jules LeRoy who discovered I-Cell. He informed me that Jamie was probably one of the first five children to be diagnosed.
I am so excited to again be participating in the annual YGF 5K Charity Run/Walk for a Cure in memory of my Jamie and in hope that one day a cure to I-Cell/ML will be discovered.
100% of the money raised from this event will be used to enhance research initiatives that will assist in improving the overall quality of life among children living with this horrible disease.
I am trying to raise at least $410, $10 for each year since I last held him. If you remember Jamie, or know how much I miss him daily, please consider helping me by sponsoring “Team Jamie & Me” in this walk and honoring his memory.