YASH GANDHI FOUNDATION
The Yash Gandhi Foundation is a registered 501(c)(3) not for profit organization. There are no over-head costs or salaries paid out by this foundation. All contributions are 100% directed to fund for research in I-cell. The foundation was created in 2002 after the parents of Yash Gandhi found out that he had a rare terminal genetic disease that had no cure. As any parent would do, we are taking the challenge to help find a cure for this terrible disease so that it can help other children in the future.
The foundation's goal is to provide grants or fund academic institutions or individual researchers who are currently conducting research in the field of lysosomal storage disorders (overall term for storage disorders that includes I-cell). The grant monies are to be used solely for the purposes of furthering the research in I-cell disease and not for compensation, salaries or equipment. The institution or individual researchers will be required to provide a grant proposal which outlines the purpose of the research study, obligates the grantee to use the funds for research purposes only, provides a report on how grant funds are used and a final study report on the results of the study.
I-CELL OR ML2
I-Cell disease is a rare genetic disease with no current cure. It occurs due to a lack of several enzymes leading to accumulation of fatty substances and carbohydrates within the tissues of the body. Children like Yash with I-cell disease typically have difficulty in walking, frequent respiratory infections that can be life threatening, overgrowth of gum tissue, joint stiffness and abnormalities of the heart. Children with I-cell disease unfortunately die in childhood. Yash passed away at the age of 8 years old.
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