About the Musella Foundation
100% of registration fees and donations collected go to brain tumor research through the Musella Foundation! All expenses are paid for by our local and national sponsors!
The Musella Foundation for Brain Tumor Research and Information, Inc. is a 501(c)3 non-profit public charity dedicated to speeding up the search for the cure of brain tumors and to help families deal with a brain tumor diagnosis. They create and distribute educational materials, provide help matching patients to clinical trials, give emotional and financial support to brain tumor patients, awareness and advocacy for brain tumor issues and give grants for brain tumor research. They maintain the "Clinical Trials and Noteworthy Treatments For Brain Tumors" website at http://www.virtualtrials.com, as well as the "Brain Tumor Copayment Assistance Program" website at http://www.braintumorcopays.org/, the "National Walk To End Brain Tumors" website at http://www.walktoendbraintumors.org/ (which this 5k is a part of) and they are co-founders of the "Grey Ribbon Crusade" website, at http://www.greyribboncrusade.org/.
Noteworthy Accomplishments
  • Helped speed up the approval for Temodar
  • Helped convince Medicare to pay for Temodar
  • Convinced Medicare to pay for Gliadel
  • Helped get Avastin approved for brain tumors
  • In 2014 alone, the foundation funded 13 exciting projects, some involve new treatments that look very promising. You can read more about those and prior projects at http://www.virtualtrials.com/grants.cfm.
  • They've released a comprehensive guide "Brain Tumor Guide for the Newly Diagnosed". It is available for free as an ebook on their website and printed copies are being distributed in the waiting room at many major brain tumor centers. It is a MUST read for anyone battling brain tumors.  It's also available on Amazon.
  • Their copayment assistance program has been very successful. They have awarded over $2 million in assistance to over 400 brain tumor patients. Patients describe this help as a life saver.
About Utah Brain Tumor Alliance
Utah Brain Tumor Alliance hosts Utah Go Grey in May 5K along with the Musella
Foundation. This non-profit organization was recently created to provide local resources to brain tumor patients and their families. Our goal is to educate patients to advocate for the best treatment options to have the best quality of life. By connecting patients to support groups, brain tumor conferences, information about treatments, etc., the goal is to help patients deal with their diagnosis. We work with other local cancer organizations such as Utah Cancer Action Network, Cancer Wellness House and others to provide a variety of resources. We also work with other brain tumor organizations nationally in addition to the Musella Foundation. Find out more about us and see past race photos at: www.gogreyinmay5k.shutterfly.com 
Also check out our FaceBook page: #Utah Brain Tumor Alliance
Twitter feed: @UTBTalliance
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