Team Amick's Angels is excited to participate in the Yash Gandhi Foundation's i Run for i-Cell 5k in memory of Amber and Charlie Amick.
Amber Skye Amick 9/18/09 ~ 5/19/13
Amber packed as much personality into her tiny 13 lb body as possible! She was vivacious and feisty, with and infectious giggle and kisses for everyone! Even though she was labeled as "non verbal" she was extremely expressive, managing a good amount of words, making up her own signs and even learning two words in Spanish! Amber loved music, especially Ozzy and would dance as much as her body would allow her. She was obsessed with turtles, butterflies and taking out her O2 cannula. She had the deepest love for her family, especially her baby brother Charlie. Amber defied odds, pulling through many illnesses, living longer than she was expected. Although Amber was not "allowed" to eat much by mouth her favorite thing to do was stick her little, chubby hand in someones drink then "drink" it off her hand and laugh hysterically. She always thought she was so sneaky doing this! She never realized we were always pretending not to look as it brought our hearts as much joy as hers to see her play this "game".
Charlie Amick 12/24/11 ~ 4/4/14
If ever there was a more iconic Christmas baby it was Charlie. From his wispy, bright, blonde hair to his big, all-knowing, blue eyes. He embodied the innocence and joy of every child on Christmas morning. Charlie was a solemn baby who matured into a playfully, energetic little boy! He smiled with his whole face and whoever saw it could not help but smile too! Charlie was fond of any type of music and would dance and wiggle non-stop! There wasn't a food he didn't like, his favorite constantly changing. He was obsessed with cars, trucks, trains and any loud toy. His true nurturing and caring spirit showed with his love of baby dolls. As much as he loved being snuggled he was the master mover. Learning how to walking with just a regular push walker, a rare feat for an I-cell child! At times he was just as spunky as his sister. One of his favorite games to play with us was waiting until his diaper was off (or he was completely naked) then rolling and squirming away laughing hysterically. His laugh made it impossible to be stern with him! Charlie's last few months were made especially bright by his puppy and fellow old soul Petey. Petey became his speech and physical therapist, encouraging Charlie to talk and walk more. They were of course also best friends. You could always find the two snuggled up on a sunny part of the rug taking a nap together.
Please consider sponsoring team Amick Angels or joining our team to help raise support for the Yash Gandhi Foundation! Money raised from this event will be used to create a worldwide awareness of I-cell disease as well as actively seek intellectual and monetary contributions to enhance research initiatives that would assist in improving overall quality of life among children with I-cell disease.