Our little Warrior Madison was diagnosed with a brain tumor at 22 months old, on September 13th 2017. She was immediately sent to The Children's Hospital of Philadelphia where she underwent brain surgery on September 15th, 2017 to remove the tumor. Biopsy confirmed that it was a craniopharyngioma, an aggressive, self-contained tumor grown from the pituitary gland, and most likely developed in utero. Madison is one of the youngest confirmed case with this tumor, and was the youngest to receive surgery for tumor resection through her nose. She spent 6 weeks on the PICU and another 2 weeks on the Endocrine unit, until we were discharged on November 7, 2017. Madison has significant vision loss from optic nerve damage, and will need lifelong monitoring, treatment, and hormone replacement therapy. She is currently in Physical, Occupational, and Speech therapies to regain skills that were lost or delayed. Madison celebrated her 2 year anniversary in September, 2019, and her next scan is 1/22/2020. She started growth hormone, a shot every day, in addition to the other medications she's been on since diagnosis, and has responded well to treatment, growing 3.5 inches in 6 months! She continues to be monitored closely by her team of doctors, helping her navigate the challenges that she faces every day. Madison is thriving; a happy, healthy, strong, fierce, warrior princess. She amazes us every day with her resilience and positive spirit. We walk today in honor of the battle that Madison bravely battles on a daily basis.
Thank you so much for supporting us on this journey. Our hope is to bring awareness to the community while also helping to advance funding in the field of brain tumor research so that our loved ones get the best care possible. Too many people fight this battle, and we need to stand behind them with all the support we can muster. Please consider joining our team, volunteering your time, or donating to the cause; any amount helps. Thank you. All our love, The McMahons