I am so excited to participate in the National Walk To End Brain Tumors - New Egypt. Money raised from this event will be used for brain tumor research.
My daughter, Madison, was diagnosed with a brain tumor at 22 months old, on September 13th 2017. She was immediately sent to The Childrens Hospital of Philadelphia where she underwent brain surgery on September 15th to remove the tumor. Biopsy confirmed that it was a craniopharyngioma, a benign and self-contained tumor grown from the pituitary gland, and most likely developed in utero. Madison is the youngest confirmed case with this tumor, and was the youngest to receive surgery for tumor resection through her nose. She spent 6 weeks on the PICU and another 2 weeks on the Endocrine unit, until we were discharged on November 7, 2017. She will need lifelong monitoring and hormone replacement therapy, and is currently in PT, OT, and Speech therapy to regain skills that were lost or delayed. Madison is thriving, a happy, healthy, strong, fierce, warrior princess. She amazes us every day with her resilience and positive spirit. We walk for Madison, and all others affected by Brain Tumors, to advance research in the field.
Today nearly 700,000 people in the United States are living with a primary brain tumor, and more than 69,000 others will be diagnosed this year. Brain tumors are often deadly, impact quality of life, and change everything for patients and their loved ones.
Please help by sponsoring me today!