Our precious daughter, Addison, was diagnosed with Chiari Malformation and Syringomyelia in 2017.  Due to the severity of her condition, she had emergency brain surgery on September 29th, 2017.  Since the surgery, she is doing well, but she still suffers with symptoms.  She has had to give up many activities and has to pace herself with others, but is adjusting to her new "normal".  Through it all, she has been a warrior and is such an inspiration.  We are so proud of her and all she has overcome.

 

After learning of our daughter's diagnosis, I found out that I also have Chiari Malformation.  I have suffered with migraines, neck/back pain and joint pain my entire adult life.  None of my doctors ever thought to look for Chiari.  Sadly, most doctors are unaware of what it is, which often leads to misdiagnosis.  Presently, surgery is not an option for me.

 

This year, in honor of Addison's 4 year brain surgery anniversary, we are excited to participate in ASAP's Virtual Walk and Roll For A Cure in Central Florida on September 25th, 2020. We are asking our family and friends to please consider donating to this amazing cause in honor our sweet girl.  These donations will help to spread awareness and provide new understanding and treatment methods for persons affected both Chiari Malformation and Syringomyelia.

 

Our team goal is $200, but any donation (no matter how big or small) will be greatly appreciated!  Or if you are interested in joining our team and walking with us, we would LOVE to have you!  Registration is still open! 

 

Please share this on your social media pages with your friends and family.  Thank you so much for your love and support.  We pray that one day they find a cure!

 

Much love and blessings to you all!

The Campbell Family

(Travis, Kristi and Addison)