$137.00
$100.00
In honor of my special great granddaughter.
$100.00
In honor of my granddaughter who is a Chiari Warrior! Praying for a cure for all effected.
$50.00
$20.00
Your journey sounds familiar. You have our best wishes and are glad to see you participate in the Walk - Jeni's dad
$100.00
Paige!!
On September 29, 2017, I went off for school like any other day. When my mom picked me up from school that night after a trip to the beach, I had a horrible headache, was nauseous, and was so dizzy I could barely walk. Two days later I heard the words Chiari 1 Malformation for the first time.
We spent four months treating my symptoms, but by February the dizzy spells continued and the “Chiari” headaches were 24/7. No medication helps these headaches but simple things like coughing, sneezing, and bending make them worse. I was ready to try anything...including brain surgery. On March 14, 2018, I had posterior fossa decompression with duraplasty and C1 laminectomy. The surgery was a success. All my symptoms were gone.
Six weeks later, my diagnosis changed to Chiari 1 malformation with hydrocephalus. Another surgery was performed to place a shunt. Since then I have had three more surgeries for the shunt. During the last surgery the decision was made to remove the shunt entirely.
Then a couple months later I started getting all my symptoms back. So in March of 2019 I flew out to have another Chiari decompression surgery with a Chiari specialist which was Dr. Orò.
We spent four months treating my symptoms, but by February the dizzy spells continued and the “Chiari” headaches were 24/7. No medication helps these headaches but simple things like coughing, sneezing, and bending make them worse. I was ready to try anything...including brain surgery. On March 14, 2018, I had posterior fossa decompression with duraplasty and C1 laminectomy. The surgery was a success. All my symptoms were gone.
Six weeks later, my diagnosis changed to Chiari 1 malformation with hydrocephalus. Another surgery was performed to place a shunt. Since then I have had three more surgeries for the shunt. During the last surgery the decision was made to remove the shunt entirely.
Then a couple months later I started getting all my symptoms back. So in March of 2019 I flew out to have another Chiari decompression surgery with a Chiari specialist which was Dr. Orò.
Please join me in supporting ASAP's Central Florida Walk & Roll For A Cure fundraiser. We hope to spread awareness and provide new understanding and treatment methods for persons affected both Chiari Malformation and Syringomyelia.
Please help by sponsoring my team for this event.
Money raised from this event will be used for research, education, and support for persons with Chiari Malformation, Syringomyelia, and Related disorders.
On September 29, 2017, I went off for school like any other day. When my mom picked me up from school that night after a trip to the beach, I had a horrible headache, was nauseous, and was so dizzy I could barely walk. Two days later I heard the words Chiari 1 Malformation for the first time.
We spent four months treating my symptoms, but by February the dizzy spells continued and the “Chiari” headaches were 24/7. No medication helps these headaches but simple things like coughing, sneezing, and bending make them worse. I was ready to try anything...including brain surgery. On March 14, 2018, I had posterior fossa decompression with duraplasty and C1 laminectomy. The surgery was a success. All my symptoms were gone.
Six weeks later, my diagnosis changed to Chiari 1 malformation with hydrocephalus. Another surgery was performed to place a shunt. Since then I have had three more surgeries for the shunt. During the last surgery the decision was made to remove the shunt entirely.
Then a couple months later I started getting all my symptoms back. So in March of 2019 I flew out to have another Chiari decompression surgery with a Chiari specialist which was Dr. Orò.
We spent four months treating my symptoms, but by February the dizzy spells continued and the “Chiari” headaches were 24/7. No medication helps these headaches but simple things like coughing, sneezing, and bending make them worse. I was ready to try anything...including brain surgery. On March 14, 2018, I had posterior fossa decompression with duraplasty and C1 laminectomy. The surgery was a success. All my symptoms were gone.
Six weeks later, my diagnosis changed to Chiari 1 malformation with hydrocephalus. Another surgery was performed to place a shunt. Since then I have had three more surgeries for the shunt. During the last surgery the decision was made to remove the shunt entirely.
Then a couple months later I started getting all my symptoms back. So in March of 2019 I flew out to have another Chiari decompression surgery with a Chiari specialist which was Dr. Orò.
Please join me in supporting ASAP's Central Florida Walk & Roll For A Cure fundraiser. We hope to spread awareness and provide new understanding and treatment methods for persons affected both Chiari Malformation and Syringomyelia.
Please help by sponsoring my team for this event.
Money raised from this event will be used for research, education, and support for persons with Chiari Malformation, Syringomyelia, and Related disorders.
$137.00
$100.00
In honor of my special great granddaughter.
$100.00
In honor of my granddaughter who is a Chiari Warrior! Praying for a cure for all effected.
$50.00
$20.00
Your journey sounds familiar. You have our best wishes and are glad to see you participate in the Walk - Jeni's dad
$100.00
Paige!!