Debbi and I are excited to be participating in the Abby's Alliance 5K for the second year.
Abby’s Alliance is named after the daughter of a dear family friend who lives with Sanfillipo Syndrome.
Sanfilippo Syndrome is a rare genetic condition that causes fatal brain damage. It is a cruel, degenerative disease that slowly robs the child of the functions needed for life.
Money raised from this event will be used for urgent research to bring more clinical trial options to children.
Please consider donating, and keep the children and families affected by this disease in your thoughts and prayers.